Nutrition News & Views

August 1, 1997
Health Information On­Line

Consumers are using the Internet to get information about health.  How reliable is this information?   That's not an easy question to answer.

A survey, by CDB Research & Consulting, indicates that consumers are showing a growing interest in obtaining information about health and beauty aids on­line as a means of supplementing traditional medical counsel.

However, easy access to virtually limitless health and medical information has pitfalls, experts caution.   "My advice to consumers about information on the Internet is the same as it is for other media:  You can't believe everything you see, whether it's in a newspaper, or on TV, or on a computer screen," says Bill Rados, director of FDA's Communications Staff.   Since anyone­­reputable scientist or quack­­who has a computer, a modem (the device that permits a computer to dial and connect to the Internet or and on­line service), and the necessary software can publish a Web page, post information to a newsgroup, or proffer advice in an on­line chat room, "you must protect yourself by carefully checking out the source of any information you obtain."

World Wide Web
By far, the most consumer­friendly part of the Internet is the World Wide Web.   While the rest of the Internet displays text only, the Web, as it has come to be called, has the ability to display graphics and multimedia (sounds, video, virtual reality).

Many legitimate providers of reliable health and medical information, including FDA and other government agencies, are taking advantage of the Web's popularity by offering brochures and in depth information on specific topics at their Web sites.   Material may be geared to consumers as well as industry and medical professionals.

But con artists have also infiltrated the Web.   "A physician was browsing the Web when he came across a site that contained a fraudulent drug offering.   He called us to report it," says Roma Jeanne Elgi, a compliance officer in FDA's division of drug marketing.   "The person who maintains the site claimed he had a cure for a very serious disease, and advised those with the disease to stop taking their prescription medication.   Instead, they were told to buy the product he was selling, at a cost of several hundred dollars."

Egli advises consumers to be skeptical when someone advocates a purported "cure" to be purchased and taken in lieu of prescribed medicine.

According to Valencia Camp, of FDA's Office of Information Resources Management, "Although the Internet can be a reliable source of information, it is important to be aware that what is found there is only as good as the quality and integrity of the original information.   What you find cannot be taken as gospel. It should be checked out and supported by other sources." (See "Is This Site Reliable?".)

If you come across a suspected fraudulent offering on the Internet, alert FDA by E­mail: otcfraud@cder.fda.gov.

FDA On ­Line
The Food and Drug Administration home page provides an excellent jumping off point for those who want to learn more about the agency and the drugs, food supplements, and medical devices it regulates.   Because it is expensive to print and mail materials, FDA offers many of its publications on the Internet.   "Our goal is to have virtually all consumer education material available on the Internet," says Rados.   "We now have more than a hundred different publications to choose from."

In addition to providing consumer education materials, the FDA site also offers technical information to help industry professionals file regulatory materials.

Materials can be downloaded to a computer and then printed out.   Those who don't have a personal computer can try accessing the Internet from their local library or from a community organization.   If you have a computer but do not have Internet access, you can receive text only from FDA's site (no graphics) by dialing by modem onto FDA's bulletin board service (BBS): (1"800) 222"0185; type "bbs " at the login and password prompts.

FDA also has a "comments" button on many of its Web pages so that visitors can offer suggestions and feedback.   However, questions about specific drugs, devices, or food supplements should be addressed to the agency in writing at FDA (HFE­88), Rockville, MD 20857, or by calling your local public affairs specialist (Mississippi's public affairs specialist) listed under "FDA " in your local phonebook, Rados adds.   Before beginning any particular therapy, however, consult with your doctor or pharmacist.

Exchanging Information
In Internet "newsgroups," such as Usenet groups, people post questions and read messages much as they would on regular bulletin boards.   Through "mailing lists," messages are exchanged by E­mail, and all messages are sent to all group subscribers.   In "chat" areas on some services and on the Internet's IRC (Internet Relay Chat) users can communicate with each other live.

Assessing the value and validity of health and medical information in news and chat groups demands at least the same­­and maybe more­­discrimination as for Web sites, because the information is more ephemeral and you often can't identify the source.   Although these groups can provide reliable information about specific diseases and disorders, they can also perpetuate misinformation.

In one instance, Serena Stockwell, editor of the medical trade publication Oncology Timessaw that the herbal tea Essiac was being touted in a newsgroup as a cancer remedy.   "Doctors were being questioned about it, so I assigned a reporter to cover the story," she said.   As it turned out, there is no evidence to support this claim.

Other information services are commercial on­line services, fee­charging companies that provide vast amounts of proprietary information.   They often include health and medical databases, electronic versions of popular newspapers and magazines, and their own chats and newsgroups, as well as Internet access.

The fact that information may be screened by a commercial service does not necessarily make it more reliable than other sources.   And most services do not verify what is posted in their newsgroups, nor control what is "said " in chat rooms.   Health and medical material obtained through services also should be corroborated by your physician or other medical sources.

Regulatory Concerns
The fact that it is easy to publish health and medical information without having the information verified by other sources presents potential issues for FDA and other government agencies, according to Melissa Moncavage, a public health advisor in FDA's division of drug marketing, advertising, and communications.   "Product information on the Internet is unlike traditional forms of advertising and labeling.   Current regulations on prescription drug advertising differ between print and broadcast media.   The Internet presents additional challenges," says Moncavage.

While regulatory agencies try to devise ways of ensuring that accurate and well­balanced health and medical information is presented on the Internet, consumers "will have it use a lot more discretion in evaluating what they see," Moncavage adds.   "A Web page can be changed very quickly.   It is easy to put up, and easy to take down.   There is no guarantee that what you see one day will be there the next."   So on the Internet, as elsewhere, "caveat emptor"­­let the buyer beware­­are watchwords for the foreseeable future.

Information Source:
FDA Consumer Magazine
September, 1996

Prepared by:
Tawana Duren
Mississippi State University, Dietetic Intern

Submitted by:
Barbara McLaurin, Ph.D., R.D., L.D.
Human Nutritionist Specialist

 

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